Hello friends! Today I wrapped gifts at Barnes and Noble in Ellicott City for donations toward the Cystic Fibrosis Foundation. My friend's friend has a son with CF. She is awesome, I met her. Her son is adorable, although I only saw a photo. :)
Here is the link to Thomas' donation page. Please consider donating this Christmas (and afterward) to make a difference!!!
The gift wrapping table had some information on Cystic Fibrosis available. I found two things have really stuck in my mind.
First, within the neighborhood of the Ellicott City Barnes and Noble there are OVER TWENTY children and young adults who are diagnosed with CF!!! That is an unusually high number. According to the FAQs on the CFF page, approximately 30,000 children are diagnosed in the United States. Additionally, ten million (1 in 31) adults are carriers of the gene.
Second, they had an awesome graphic, which I cannot find on the internet, showing different treatments of all varieties (genetic, etc...) and what stages of research they are in. Many are in initial laboratory testing, a lot are in varying stages of human testing, less than 1/4 were in the approved stage--but so many are almost there!!! You're donation ***can*** make a real, tangible difference!!!
Thomas is taking strides to make "CF" stand for "Cure Found!" Visit Thomas's GREAT STRIDES Home Page at http://www.cff.org/great_strides/EdwigeGriffith5746!
Merry Christmas Eve!!! I love you all! <3
I Think Gene Autry Said It Best. . .
15 years ago
Thank you so much for writing this blog. I had an amazing support from friends at Barnes and Nobles this week (old and new!) We raised a lot of $$ for CF and this was the beginning for this coming year, as we hope to raise a lot more for the walk on May 22nd, 2011 in Ellicott City.
ReplyDeleteThe "graphic" is the CFF Pipeline that can be found on the CFF website: http://www.cff.org/treatments/Pipeline/
This is what the donations do: provide funds for vital research for new drugs and therapies, that help people with CF live longer and healthier lives.
Every little bit helps, so thank you all for considering CFF when you donate.
Wishing you healthy and Happy Holidays.
Edwige Grififth (Thomas' mom!)